Jackson NICU Day 13 (03.06.12)
I got peed on (twice) during this diaper change...normalcy is so comforting to me these days.
|Faces of Jackson|
The word of the day is frustration. Jackson had excellent blood sugars over night so they lowered his Dextrose this morning. When Nurse Mousy and her team of doctors made rounds today they said they would keep lowering the Dextrose today. But after a few good blood sugars today the nurse never lowered his Dextrose so I asked her why it wasn't being lowered. She told me the orders say to lower the Dextrose only if his blood sugar is higher than 70. Not what Nurse Mousy told us and Jackson's blood sugars were in the 60s all day. We also didn't get a platelet count over night so we made sure the orders were there for tonight. During rounds we did ask when we can talk about going home and she said he had to be off the Dextrose and have good blood sugar for 24 hours.
Chris and I are trying not to get impatient but we miss our boy so much and just want him home. We are learning through this process that we need to start asking more questions. It feels like there is really no plan to get Jackson home to us. Our plan is to talk to Nurse Mousy tomorrow and figure out why the blood sugar has to be 70 before we can decrease the Dextrose. Also we want to talk about a better plan for getting him home.
We are ready for our Nurse Kim to come back. She has been our favorite nurse so far and we miss her. We were really lucky she was there Friday, Saturday and Sunday with us and did an amazing job keeping us up to date with all of Jackson's labs, etc. We've liked our other nurses but have had to ask about tests results with each of them.
So I will leave you with some positives of the day...
I got a small nap in a recliner with my boy today and it felt normal. We don't have many of these moments at the hospital, it definitely made my day.